The Cystic Fibrosis Center of Chicago - Pioneering CF Care for Individuals of All Ages

    Advocacy
    The Cystic Fibrosis Center of Chicago is an active advocate for the CF community
    at large as well as individuals and families affected by this condition. Dr. Boas and
    The Cystic Fibrosis Center of Chicago accomplish this through their own efforts
    and also by being major supporters of The Cystic Fibrosis Institute (CFI).
    This not for profit foundation supports major CF initiatives as well as offering
    clinical assistance to those in need, advocating on behalf of individuals with CF
    and their families, engaging in research, evaluating new and cutting edge CF
    treatments, and offering educational programs. An annual fundraising campaign
    made possible by the generosity of so many enables us to perform this vital
    mission. Our efforts on behalf of the CF community have provided invaluable
    assistance and we look to forward to continue serving this mission.

CFcenter@wecare4lungs.com

Family Appreciation Picnic 2009

Announcement of Illinois' Mandatory
Newborn CF Screening

Dr. Boas and Carolyn Cronin,
Former Executive Director,
Cystic Fibrosis Foundation, Greater Illinois Chapter

American Association
for Respiratory Care

Eric Whitaker,
Former Illinois Director of Public Health,
with Dr. Boas
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North American Society
for Pediatric Exercise
Medicine

Cystic Fibrosis Institute

CFI can offer an incredible array of support services. Examples of just some of them
are noted below.

    As a sister organization of The Cystic Fibrosis Center of Chicago, CFI was
    instrumental in Illinois’ adoption of mandatory CF screening for newborns. In
    conjunction with this legislative breakthrough, Dr. Boas has implemented The
    NewBorn Screening Consultation Program, which provides immediate access and
    consultation for any infant who screens positive for cystic fibrosis.

    CFI has an active voice in advocating on public policy issues affecting cystic
    fibrosis. Additionally, CFI is active in the American Academy of Pediatrics and the
    American Association for Respiratory Care.

    Our advocacy efforts also have a face. Danny Ferrone is a young man who has
    cystic fibrosis. But Danny is also an athlete who successfully completed the
    2007 Chicago Marathon and who, with our assistance, trained to compete
    in an Ironman triathlon. The Cystic Fibrosis Center of Chicago and the
    Gatorade Sports Science Institute are engaging in a collaborative effort to refine
    and maximize Danny’s training efforts. Danny is living proof of what can be
    achieved with the backing and assistance of The Cystic Fibrosis Center of
    Chicago and The Cystic Fibrosis Institute.

Peak Work Capacity Readings

    Our efforts have spanned international borders. A young girl with cystic fibrosis
    from Mexico came to Chicago for the sole purpose of seeking treatment with
    Dr. Boas. Affordability was an issue and Dr. Boas provided care at no cost to
    the family.

Read about our leadership role in the CF world.